Hiding from the world

I’ve been hiding from the world. King Ben has been having a really rough time and I’ve been having increased pain from my Fibromyalgia. All that plus the horror that was the election triggered my depression. Wow! What a mess!

King Ben’s school was a major problem. I loved his teacher but the aides and the administration needed training. He was eloping daily. He was hitting and biting and kicking. That’s not how he usually is. We called a meeting to find out what was causing all these problems and how to fix it. The end result was a change of schools.

He has been at the new school for a week and already we are seeing a huge improvement. I am cautiously optimistic. I have no idea what thing or combination caused the change but I’m beyond thrilled that he is happier and more comfortable.

My pain is still elevated so my doctor has changed the formula in my intrathecal pump and increased the rate. I’m hoping that plus a happier King will ease the pain.

The depression comes and goes. It’s been that way as long as I can remember. I don’t take any meds for it because (knock on wood) it hasn’t gotten that bad in a long time. I know what to watch for and will ask for the meds if I need them.

The outside world is still a mess and I try to stay informed but I think I’m going to keep hiding. My family is happy and that’s enough for me right now.

6 thoughts on “Hiding from the world

  1. Wonderful to hear things are going better for King Ben. I hope that you feel less pain from the Fibromyalgia soon – and the depression lessens. Sending good thoughts, vibes and prayers to you and yours!


  2. hey, if you leave a comment on one of the blog posts i wrote, it will give me your email address without telling anyone else. or alternatively, if you click “edit” on this comment, it will give you mine and you could send me an email.

    you could be thinking “but whats in it for me?” i do not know… i would send you a brief email, i still dont know whats in it for you ๐Ÿ™‚


  3. Hope you are feeling better and King Ben is liking his new school.
    I’ve raised a son with autism and I know it can be difficult sometimes. Mostly, it is pure joy seeing the accomplishments and wins and his achievements.
    This month we will be celebrating his graduation from college. It’s been a long road yet he is almost there. The next step, no one knows. One day at a time.

    Keep on writing. We will be there for you to stand by you and King Ben.


    Liked by 1 person

    1. Thank you for your words of support! There are definitely difficult times but there are also huge leaps of achievement. He is doing fantastic at his new school. Congratulations to your son๐Ÿ‘๐ŸŽ“ and to his Mama for helping him make his way๐Ÿ’

      Liked by 1 person

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