If you missed the start of this series, you can find it here. A lot of things will be the same or very similar.
We got Daughter to work on time. Ben kept bringing up the chalk. He was stuck on it. I was able to distract him with a dollar toy from The Stash, a gun thingy that launches foam airplanes.
We got home and I put him and Zeus in bed, then got Horizontal until Sunset.
Ben got out of bed at 8pm again. Right in the middle of my ME/sunset time. I sent him to the bathroom then back to bed. He was still making noise at 9:15, I’m not sure when he went to sleep.
I did my Night Things and took my sleeping pill around 10:45. I probably fell asleep by 11:30.
The summons to Living Room Duty came around 5:15am. By the time I got coffee and was texting Daughter that we were up it was 5:30, so I’m guessing at the 5:15.
When I went to get his water bottle and tablet charger I discovered that his charger cord was broken. It looked like Zeus caught it with a claw or tooth. Of course the new Fire tablet has a different charger than all our other android devices.
So my morning started grumpy. Then Ben started about the chalk again, before 6am. I told him the chalk was coming in the mail, today. I asked if he could calm down, sit down, chill out a little? He ran outside and started spinning in circles… I guess that was a No. JIMINEY CRICKET!
I mentioned that we needed to get Mommy and he immediately put his shoes on. This was at 6:30. I told him we weren’t leaving until 7:15, she was still working. He asked me to set a timer. Meds at 6:39 because I couldn’t wait until 6:45, I was hoping the Adderall would chill him out and slow him down. I turned on Svens lights and uncovered him.
Ben decided ALL of his Kittys needed to come. He also had to bring his tablet, water bottle and the airplane-launching-gun dollar toy. I gave him a bag to put everything in.
We got Daughter with the only problem being that Ben was unhappy that I locked the windows. I didn’t want him pointing the plane launcher thingy out the window, and he would’ve. He has been having more trouble than usual Following Directions.
We got home and he was pulling on the window thing so hard I thought he’d break it. I unlocked it so he could roll it down. “All Better?” He said yes and I told him to roll it back up. Up and down and up and down and up and LOCKED. Into the house we went.
He immediately went and banged his head against the front door and threw himself down. I “helped” him up. He followed me to my room and told me to get dressed and go to the store for chalk. 7:40am and it had been a craptacular morning.
I told him fine, I was going to the store. I needed to get the charger anyway. I checked Goigle to see what, if anything was open… Walmart was open. Swell! I hate Walmart, but I was desperate to turn this day around. There was no way I wanted to spend all day listening to him yammer about the chalk and either go Full Meltdown or be on the verge of it.
Off to Wally World with instructions to Ben to be good for Mom or no chalk. I’d just come back home if Mom called me. I got the charger and Melatonin and a few other list things and was searching, searching for chalk. I went to the Crafts Department and scored
There were three boxes and I was tempted to take all three, but I left one. I do have more chalk shipping this week.
Got home with my treasures and Ben was playing with his old chalk. I also discovered that he had left his Bag O’ Kittys in the car when we got home with Daughter. That might’ve been part of the head-banging issue he was having. His ability to communicate is limited at the best of times and he hasn’t been at his best lately.
Daughter said she wasn’t sleepy yet and told me to go rest. I wasn’t going to argue. Horizontal Time!! I stretched out my back and hoped that we could forget everything that came before, make the Official start of the day 9am, when I got back from WallyWorld.
At 10:00 Daughter went to lay down. Ben was enjoying his chalk, I could tell from the Happy Noises and the song, Let’s Go Fly A Kite, but I knew he’d be in to get me soon enough. It was maybe five minutes. He just sat there, looking at me. Yep, communication issues. His words wouldn’t come out of his mouth. “Gramma come living room” is an easy one, he says it several times a day, every day. For him to be unable to say it then, when he was happy, meant something was short circuiting. I grabbed my stuff and began my Couch Sittin’.
Meds at 10:45 in the chalk area. He had completed a project with the new box
Then at 11:00 the delivery of the five glitter chalks arrived. He was ready to take a break at that point so he just broke them into “working” sizes and left them. He came to the couch and grabbed his tablet, stretched out and started surfing.
He hung out on the couch with me and munched on some poofs for a while. I had switched the AC on at around 11am. Ben has been wearing Daughter’s Winter themed cardigan sweater since last night. It’s heavy like mine, but it has pockets! I think he enjoys the extra weight, but even on a cool-for-summer day, it’s too hot for a heavy sweater.
He got up and ran down the hall and back up through the living room to the bathroom and turned around and back down the hall again. He did this for a couple minutes, until he was out of breath, then flopped back on the couch. Alrighty then. More poofs and tablet. Chillin…
Daughter took over Living Room Duty around 2:45. It was time for me to get Horizontal again. Laying down on my side is really the most comfortable position for me. I still have to move around alot though or my joints get achy. Already having plaque psoriasis on my body and pustular psoriasis on my palms and soles of my feet raises the risk that I’ll develop psoratic arthritis. I probably wouldn’t notice another pain syndrome since I already have one. Psoriasis is an autoimmune disorder and whether or not Fibromyalgia is autoimmune is up for debate. I’m just a physical mess.
Ben came to visit me a couple times, but mostly stayed in the living room with his Mama. I was happy to be alone-ish (Zeus was with me… and when he’s in Ben’s room, Sophie Cat is with me) and even happier that they were spending time together. Daughter is off work tonight and tomorrow night… no stress on the evening routine.
Daughter decided to have food delivered from the Golden Arches. It just got here so I’m gonna go nom nom my fries before they’re cold and gross. Here’s a song we all know…
After a very rough morning, today turned out pretty good. Ya just never know what’s gonna happen or when. Life at Casa Cuckoo is a rollercoaster ride for sure. Yep, it might make you feel like you’re gonna barf sometimes. It can also be unexpected and thrilling. Tomorrow I go for my monthly pump fill, that’s exciting, right?! Stop by, I’ll take you along with me.