If you missed the start of this series, you can find it here. A lot of things will be the same or very similar.
I wasn’t going to call Younger, but at 5:00pm Ben started falling asleep. I woke him up and ran his bath. I texted Younger real quick to let her know we needed her, please and thank you, then I got Ben’s Jack Skellington onesie jammas from outside where they were hanging to dry. I knew those jammas would get him into the tub. He had chalk dust all over him, he needed a bath.
After his bath he was wide awake, or he was staying awake just to see Auntie. I felt bad for calling her over when it wasn’t necessary, but she told me several times it was no big deal, that she didn’t mind, that she liked seeing him. Good Auntie! Ben is lucky to have so many people love him.
I did get a few pictures before I had to take Older to work. The sun was visible in the gross sky. Gotta collect my data for my Science Project.
When I got home from Driving Miss Daisy, The Boys were tucked in. Younger hung out for a few minutes but wanted to get back home. Hugs and thanks and I locked up.
Night Stuff, ate something, wrote an email, tried to keep myself from dozing off, failed a few times, took my pill at 11:30pm and gave in.
I got Bounced at 2:30am. I was sleepy AND dopey. (also Grumpy and Sneezy, four of seven) We went to the living room. I got the stuff, texted Daughter and began Couch Sittin.
I dozed a little bit. Ben had turned on Sven’s lights and uncovered him. It was only 5:30am. I told Ben he’d done a good job, but that I usually waited until the sun was coming up. I fixed Sven’s fallen hammock and got him food. Yes, and paparazzi’d him…
Then I went and looked at the sky. It was still dark, at least an hour before the sun would be visibly up, but I was looking for the moon. I was in luck, I saw the Moon, Venus and in the west, Mars. That told me the smoke had lessened too.
Back to more Couch Sittin, sending and reading email, texting Daughter… Stuff. When the sky started getting lighter, I went to look for sunrise. It wasn’t fantastically dramatic, but it was pretty and it was visible.
Then it was time for Ben’s meds and getting ready to go get Daughter from work. We picked her up, came home and Ben immediately went to the door, banged his head and fell down. Transitional times are always unpredictable and often turn bad. Today he was ramping towards bad. I talked him down, gave him my last box of chalk and Daughter and I talked about her shift.
She was hanging out in the living room waiting for a phone call from work to see if they were going to let her come in tonight. Apparently she is overdo for a second TB test and the Charge Nurse was freaking out. The manager called her, told her to keep coming in, but get the test done ASAP. It’s a formality.
She changed out of her scrubs and took over Couch Sittin so I could stretch out for a little while before she goes to sleep. I really wanted to sleep, but figured it would make me logey and Ben was already showing signs that he was going to be unpredictable, I needed to be clear headed.
At 10:00am Daughter still hadn’t asked me to take over, and Ben had been to my room several time, scripting Angry Words. He kept telling Daughter to “go to the principal’s office”. Mostly she tries to joke with him when he’s like that, but I know it hurts her feelings. Anyway, she was dozing and I told her to go lay down in her bed and sleep. She said she was waiting for the mail, she was worried about her check. I told her I knew she was worried but there wasn’t anything she could do, and she needed sleep. She went to lay down. I was Couch Sittin again.
Ben was playing with his chalk when I took over. He continued doing that for quite a while. He took a tablet break then was running around grabbing this and that, he was making something. I have no idea what, I just taped when I was told to and ignored the mess he was making. He’d been scripting Angry Words all morning. Something made him get up at 2:30am… It’s one of the most frustrating things about his limited ability to use speech, not being able to tell us what’s bothering him, if he even knows. He may not be aware of what is bothering him. A lot of autistic people have trouble identifying their mental, emotional or physical state.
Anyway, when the alarm went off for the 1pm half Adderall, I was surprised. I hadn’t been aware of the passage of time. I switched on the AC around 11am and closed up the house, so I didn’t even see the movement of the sun. Stuck in limbo-time in the Kingdom of Ben.
When the 2:30 med alarm went off, I gave Ben his meds and checked the mail. We had mail, but Daughter’s check wasn’t part of it. Of course it wasn’t, because Murphy’s Law. She was still sleeping. I sent a text message to her phone. I figured she might as well sleep. I guess we wait and see if it comes in Monday’s mail, or she contacts whoever she needs to contact on Monday to report it lost in the mail. Meanwhile… oh, goodness…
Daughter got up around 3:30pm. I was SO ready to get Horizontal. She got the text message, she was NOT pleased. I don’t blame her. I’d be upset at not receiving my paycheck too.
September always seems to mess with us financially. Every October 1, I get a settlement check from the work comp insurance company. I pay cash for my medical appointments until that yearly money runs out and Medicare picks up after that. It was negotiated between them, I had nothing to do with it. Anyway, October 1 I get a set sum of money. It’s a good amount. It goes to refilling my pump and paying for my medications, but it’s also a buffer against unforeseen crap like a missing paycheck.
I tried to contact Younger to see if she could come tonight. She is down by the bay hanging out with friends and she didn’t drive, so I got a maybe. Basically, I’m not counting on it. So we begin Pregame… hopefully things will go as well tonight as they did last night. He was awake and doing okay when I Drove Miss Daisy… tonight he rides along.
I’ve heard this song a few times on the radio and finally looked it up. I think it’s fairly new. It’s catchy! Enjoy!
Thanks for hanging out with us today. The started waaaaay too early for me. It was generally pretty mellow until 2:30 when it took a nosedive. Life goes on and so must we. Come on by tomorrow. Who knows what will happen… something always happens. ¡Hasta mañana!