If you missed the start of this series, you can find it here. A lot of things will be the same or very similar.
Around 5:30pm Ben started doing the SpazmaTaz thing. Daughter brought his meds, then I ran his bath. This game of grabbing the front of our shirts and jibber-jabbering while making an Angry Face is getting Super old! It really upsets Daughter, reminds her of her father getting in her face. Ben gets obsessive though, and when he’s stuck, he’s stuck. Sometimes we can redirect, most times he’s stuck and can’t get past whatever it is. Hopefully it’s all just his way of saying he’s tired and uncomfortable, and a good night’s sleep will help. Hopefully!
I helped him get cleaned up, then left him to play. I did my unspectacular Sciencey Stuff and waited for it to start cooling off. The Sun seems to be setting faster. After Solstice we were losing like one to two minutes of light a day. It seems to be accelerating since the Equinox which makes sense, but I’ve never really noticed it before. Anyway, the Sun was no longer visible and Ben was done. Daughter took him to bedtime, him and Zeus both. I took a few more pictures using the “pro” setting. I noticed what looked like rays of sunlight/color extending up. Very cool.
I did the Things and I did some Stuff and I ate the food Daughter had delivered from Rally’s (Checkers in some places… fast food burgers and chicken) and I relaxed. I was tired but not sleepy yet. I was waiting for it to cool down some more too.
Daughter went to bed at 8pm. I did more Stuff, ate the rest of my food (I couldn’t eat it all at one sitting) and enjoyed the quiet. I heard cars on the road but no yammering of the people. And there weren’t a lot of cars… time slipped away and before I knew it, it was 11:30pm. I took my pill and called it a night.
I woke up to the 6:30am med alarm, plus a bunch of email notifications. A bunch of garbage notifications. My phone can’t give me notifications when I have text messages from my Daughters, but it blows up with crap I don’t care about… at 6:30am in the freakin morning. UGH!! So I got up, cuz I wasn’t gonna be able to sleep anyway… Zeus had been waiting to pounce. It’s wonderful to be so loved by a Big Dumb Dog. I greeted him and petted him then I shoved him out of my way so I could get up.
Daughter and Ben were on the couch, Sven was still covered up, and there was no coffee. UGH!! I turned the coffee pot on, made my pit stop, and uncovered Sven. He was awake, giving me a glare like “bout time…” I got his dish, dumped the old greens, got fresh greens and the last worm. Sven was still in his Judgey Corner, so I moved him to the dish so he could see the worm. He got greens, then more greens… the worm had burrowed down. Then he got mad and got a poofy beard and was giving me side-eye. No one gives side-eye like Sven. After putting Ben on the GLYSB, Daughter opened a delivery box that had Sven’s new, bigger dish. I washed it real quick and switched his food to the new dish… maybe he’d have better luck with the worm. He got it before I could get around to paparazzi him. He claimed the new dish as his own.
Meanwhile, the Sun had already come up, and the crows were breakfasting on pecans. Whatever was my motto this morning. I wanted coffee and about two days more sleep. I got my coffee and forgot about the sleep. I got myself presentable for public, so I could help Daughter walk Ben around to the parking lot to meet the bus. She sent him to school in his pajamas. They’re cotton shorts and a t-shirt, so I guess you could call it “loungewear”… seemed kinda wrong to me. He added a suit coat and tie, of course. Must have his suit coat and tie. He got on the bus, no problem and waved back at me. I Danced back to the house with Daughter calling me a “weirdo”. I asked “You’re just now figuring that out?”
After opening the delivery box, Daughter went to her room. I fiddled with the cardboard blocking the window over the AC unit, trying to seal it better, then turned it on. Like yesterday, it cycled on for a few seconds every few minutes. It was still fairly cool, less than 70ยฐF (21ยฐC) anyway.
I spent the time Ben was at school doing a whole lot of nothing. I was mostly Horizontal and I just went through my WP reader, email, a few texts and a couple of games. I did walk over to Little Caesar’s to get Crazy Bread for Ben, then the market for ginger ale for Daughter and some stamps for our ballots. I tried to tell her we didn’t need stamps, but she had that look… can’t hurt to have stamps anyway, right right? Right right!
Ben was scanned onto the bus at 1:28pm today. TWO whole minutes early! His teacher called Daughter again today. Ben had another rough day, lots of eloping. And his new “loungewear” shirt is trash. It didn’t even come home. Apparently it got caught on the chain link fence and ripped a little on one of his elopements, then it ripped more when a staff member was trying to fish him from under the tarp covering one of the playground structures. Daughter said the teacher sounded a little nervous when she was explaining about the shirt. Daughter reassured her that we didn’t care about the shirt. Ben came home once without shoes cuz he chucked them over the fence at his previous school. Nothing he does surprises us.
So we were waiting for the bus and wondering what kind of mood he was gonna be in. And we waited, and we waited… they’ve been scanning him off around 1:52pm, so figure the bus passes the house at 1:50 or so. It takes us a minute to walk down the driveway, around the corner and up the alley/street to the bus. So at 1:56pm Daughter was wondering if there was a problem. She always imagines some worst case scenario, like Ben grabbed the steering wheel and flipped the bus and it caught fire, killing everyone in a twenty mile radius. I told her to relax, he wasn’t even officially late, his drop off time is 2:05pm. And that’s what time they scanned him off. Sometimes there’s traffic on the freeway in that area for no apparent reason. We got caught in it once after an IEP meeting.
We got him off the bus, dishevelled and spacey looking. He was asking for his phone, Daughter had his backpack and told him we’d check when we got inside the house… behind a locked door. Using my quick-thinking skills, I walked ahead, opened the door, and stood blocking the mailbox, which contained a package delivered for Younger’s Partner(?)/Roommate. They were gonna pick it up after work and they planned to grab and go. Plus Ben always thinks ALL packages are for him.
Into the house, shoes, socks, jacket and tie removed… water bottle refilled, Crazy Bread and tablet delivered and Peppa phone fished from his backpack, thank goodness! He paced for a bit, Daughter made him use the bathroom and that solved the pacing. He was obviously discombobulated and having a rough time. He hadn’t spoken except to say “phone”… language seems to go first. The heat, and the lack of sleep and the extra stimulation from going to school seemed to have fried him a bit. Daughter and I agreed that we would go with the flow this afternoon/evening. If he fell asleep, we’d let him sleep.
Ben hung out in the living room with Daughter until just before 5pm. I went out to show her something and he followed me back to my room, but I guess he preferred the AC coolness of the living room, or Daughter’s company, because he left after a couple minutes.
Daughter will be cooking his steak soon, then it will be bath and bedtime. Another hot, rough day for HRH and an early bedtime with no wakeup should help him. He has Zoom tomorrow on the schedule but whether he attends or not will be decided tomorrow.
The anthem for all of us insomniacs
Did you enjoy doing a lot of nothing with me today? I enjoyed sharing the day with you! Too bad we can’t follow Ben, like Mary’s Little Lamb, and see what happens there, share Ben’s Adventures… remotely, virtually… I still very much enjoy my two days of School Time every week, and I look forward to more days in the future. We can enjoy the quiet, just relaxing, mellow Adventures too! No GLYSB tomorrow, no work for Daughter either. What kind of day will we have? Will we Zoom, or skip it? Will we have a relaxed or SpazmaTaz day? I guess we’ll find out tomorrow… together. ยกHasta maรฑana!
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HUGS!
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Ahhh, bummer. It sounds like Ben is having a tough transition. I bet a lot of kids, including my own, will have the same after their schedules have been altered for so long. I am glad you had a nice day being horizontal – and some hours of continued sleep! Nice! Sven really does seem to like his bowl. I think his claim is cute ๐ Well, I hope Ben has good night’s sleep and you all have a really chill day tomorrow!
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Thanks, Robyn. ๐ I don’t know if it’s the transition so much as the high pressure and heat. It was like 98ยฐ again today. He is ALWAYS extra agitated when we have high pressure. I think he’s worrying about something too… the Angry scripting and reenacting… his hair falling out… the sleep. Maybe it is school, but he did really well last week๐คท๐ผโโ๏ธ And he’s been pretty much okay at home. Minor stuff, occasional bad days, regular stuff. It’s so difficult to know with him lacking speech and the language to explain. Ah well… keep on keeping on, right? WE got this!๐ช๐
And you’ve only got 11 more days…๐๐๐๐ผ
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Glad Sven is happy with his new china! I wouldnโt worry about Ben in pjโs, with or without a jacket. As long as the day is running smoothly…
Wishing you some good ๐ค tonight!
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Sven cracks me up! I think the new bowl is a little too big… we need one that’s “just right”๐๐๐
Yeah, the PJs looked like shorts and a t-shirt… the t-shirt got ripped twice and didn’t come home, so he won’t be wearing that outfit again๐๐คฆ๐ผโโ๏ธ
I hope we ALL get some good ๐ด๐ด๐ด yourself included!๐
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Ben had a rough day. I bet heโs happy to be home. I hope he sleeps well and has a good good morning โ๏ธ๐ And You too! Sven looks so happy with his new bowl! ๐ฅฐ๐
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Sven is hysterical. He seriously looks like he’s smiling with his mouth part open like that. And the poofy beard when he missed the worm…๐คฃ๐คฃ๐คฃ๐คฃ Poor Sven.
And poor Benโน definitely had a rough couple days. He was mellow at home. Worn out, I think. We don’t have to wake him up in the morning so hopefully he’ll get good sleep๐ด๐ด๐ด๐ด
I hope you had restful sleep and sweet dreams ๐ช๐ด๐๐ฆโจ๐
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Aww, I feel for him. Less sleep, hot weather and obviously the stress of school combination is hard for a kid. Hope you all can relax tomorrow. Love and hugs ๐ค
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Thank you, Sadje. He did so well last week, I feel bad that the sleep issues and weather made things difficult for him too. He was completely wiped out at home. He ate a lot and watched his tablet. He seemed to have lost his ability to speak too. Really tough for him. I’m glad we don’t have to wake him up Wednesday morning. Hopefully he’ll be feeling a little better!
I hope your Wednesday is going wonderfully!๐ค๐ฅฐ๐
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I hope so too. Thanks Angie, it has started well.
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Poor Ben! And of course you ladies too! Sven is the only one who seems on top of things right now. You all just need to take a break and yes – go with the flow!
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Yep! Ben had a rough couple days. He lost his speech this afternoon. Couldn’t get the connection to work. We could tell he wanted to say something but, he couldn’t make it work. He was just wiped out! He was pretty mellow at home, ate a lot and watched his tablet a lot. He needs to be reminded to eat sometimes and he’s been eating a LOT lately, like he’s getting ready to grow.
Tomorrow is another day! Hopefully a better one. Sven won’t be happy… all the worms are gone.๐๐ค๐ฅฐ๐
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So, Ben is redesigning his couture whilst at school, eh? That’s actually a very handy skill to have. When used appropriately, of course… ๐
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Yeah, Ben is fabulous at redesign and repurposing things๐๐คฆ๐ผโโ๏ธ all the knobs from our kitchen cabinets have been repurposed as “searchlights” as in “Fox Searchlight Pictures” logo๐คฆ๐ผโโ๏ธ๐คฆ๐ผโโ๏ธ (I need a “banging my head on the desk” emoji. “Face palm” isn’t strong enough ๐)
Too bad about the shirt though… it had a glow in the dark skeleton on it.๐คท๐ผโโ๏ธ
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Brain Stew was one of my daughter’s high school marching band songs.
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That’s awesome!! Hurray for the teacher!
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Poor Ben – hope the weather cools for him soon and things settle for you all.
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He’s been doing okay at home, and he did okay at school last week. I think it was just the combination of no sleep, hot weather and too many rules that made school so rough this week. Plus, he forgets to eat and we’ve told the staff to put his snacks in his hands, but they’re busy with other things. He has free access to them all day, but he doesn’t realize he’s hungry or slow down long enough to eat.
Now he’s sneezy and his nose is running… this stupid weather๐๐
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Itโs so tough for him. Not easy for you. Sending you hugs xxx
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Thank you, Gary! He definitely had a rough two days at school this week. He did okay at home, probably because he was so tired after the explosions.
The weather is supposed to cool back down starting Sunday, so hopefully next Monday & Tuesday will be better. ๐ค
The staff at his school expect the kids to have a rough time. They understand how difficult all the changes and the long break have been. We are SO lucky that Ben goes to this school!!
Sending the hugs back, with intrest๐๐๐๐๐
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It does sound like itโs a really good fit for Ben.
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I remember those days waiting for the school bus to bring my boy home. It was a huge break to send him to school.
When he was 4 years old he had a speech therapist as his summer school teacher. The bus would pick Andrew up really early. The school was over 20 min away located in San Ramon. Poor guy had to be on the bus ๐ for an hour and a half!
I needed the break.
School must be hard for Ben. Does he like his teacher? Throwing his shoes over the fence? Oh dear.
We just got a call from Andrew. His best friend is getting married tomorrow in Atascadero. So he has been with the guys having a bachelor party. He cooked for them the first night. So cool.
So great he called to check on us. He has been included in the texts and emails, so he knows whatโs going on with his grandma.
Iโm really lucky, my boys are sensitive and think to call.
Glad you are taking care of Angie.
Hugs
Teri
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Ben generally does pretty well at his school. He goes to a “non-public” autism school. It’s basically a private school that only takes the public school kids that can’t be helped by their home district schools. Our home district pays his tuition.
But yeah, he’s had the same teacher and the same classmates. The school saw that they were a good group and is keeping them together. It was a bad combo this week with the heat, and him not sleeping and the rules at school. He’s been off since March, so it’s like starting over from scratch. Rules and schedules and expectations he doesnt have at home. He has more freedom at home, obviously.
Its supposed to be much cooler this week, so hopefully that will help. If we could get his sleep schedule on track, that would help too.
๐๐๐
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