If you missed the start of this series, you can find it here. A lot of things will be the same or very similar.
Sunset was more of the same. Other than the storm that blew in and out, the sky has been totally clear for days and days. It’s nice to see the blue, but a few clouds would be nice too. The low humidity is horrible for my plaque psoriasis. It makes my skin drier and itchier than usual.
Anyway, I took pictures cuz that’s what I do. Ben was chillin on my bed, watching his tablet. I came inside and found him dozing, so I woke him up. He’d already eaten, so I ran his bath while Daughter stripped him down. It was early, but we needed him to stay awake to Drive Miss Daisy.
We got Daughter to work without any problems, then I drove home, settled The Boys, and texted Daughter to let her know we were home safe. Then Stuff and Things, etcetera, etcetera, etcetera…
I konked around 11pm, woke up around 3am and saw that I hadn’t taken my pill. 3am is way too late, especially when I have to pick Daughter up from work. I was awake for thirty minutes or so, then drifted in and out until 5am.
Around 6am I let Dogzilla out of Ben’s room, then headed outside to look at the sky. Ben woke up, but didn’t get up until after his meds. When I took them in to him, and said Good Morning, his first words were “No bus today.” Unfortunately I had to agree with him. I told him we had to get his Mama in a bit, but then we would stay home. He stayed in bed a while longer, and I took pictures of the sunrise, cuz that’s what I do.
We got to the hospital early, so we listened to the radio and waited. Daughter got off on time, and she told me about her shift on the way home. One of her patients is an autistic man who is a resident of the Skilled Nursing Facility she previously worked at.
She was very sad to see him in restraints. He kept pulling his I.V. out because it hurt. He has an infection, so he’s receiving antibiotics as well as the usual fluid. He needs the I.V. I guess he got combative when they were putting it back in, and they had his arms and legs restrained. Daughter took the leg restraints off, and talked to him about leaving the I.V. alone. He just kept telling her it hurt. The whole situation is heartbreaking.
When we got home she said she wished they had some kind of Autism Sensitivity training or something, so I suggested she talk to her boss about it. She could give a presentation. It didn’t have to be anything fancy or official, just her experience caring for someone with autism. If she could find a coworker on the spectrum to give the autistic perspective, it would be even better. I hope she does it.
She changed clothes and did Couch Sittin Duty, Ben ran outside and played with the chalk, and I got ready for my walk. I didn’t stop to take pictures today, just walked. The Sun was super bright, and I don’t have sunglasses or a hat. I ordered a visor with the gift-card given to me by a friend for my birthday, but it hasn’t arrived yet. Anyway, bright sunshine in my eyes gives me noggin ouchies, so I booked it, and was done in thirty-one minutes.
Ben was still outside when I got back. I told Daughter to go ahead and go sleep, that I was ready to take over. She stayed on the couch until 9:15am-ish. Ben had come back in by then and was starting to bug her with his verbal games.
The morning moved into the afternoon with not much happening. Meds at 9:30am, 10:30am and 12:30pm were the only markers of time’s passage. Ben played with his chalk, and vocalized. Lots and lots of repetition. It does start to grate on the nerves.
Sven stayed on his hammock all morning. Around 1:30pm, I looked up and saw he’d moved. I got up to paparazzi him.
He went down to the Judgey Corner, then went to stand on his food again. He got tired of me and got back on his hammock. Daughter got up around then… 2pm-ish, and took over Couch Sittin Duty. I went to my room for some Horizontal Time.
Daughter gave Ben his pizza at 4pm. I’d brushed and rebraided his hair around 3:30pm. We were definitely ahead of schedule, but it’s better than being behind, and fighting… especially on a Driving Miss Daisy night.
The DJ in my head has been playing this tune for about a week now. It’s off and on, but it’s daily. Maybe I need a vacation. Ya think?!
A much better wake up, and a pretty mellow day. The big “Event” was Sven getting off his hammock. I like days when there’s very little to write about. Mellow is good. Tomorrow is GLYSB Eve, and Daughter is off. She works tonight though, so she’ll be sleeping tomorrow. Couch Sittin Duty for me, after my walk. Hopefully a day very much like today.
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HUGS!
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Your daughter has a wonderful real perspective to offer her coworkers. I hope she does it too. Last night must have been hard for her. Her patient was very fortunate to have her on duty.
Perfect song for spring break time of year. Sven looks like he thinks so too. ๐ ๐ถ๐ค๐
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Dealing with it every day, we forget that most people really don’t know much about autism, and what they DO know is often misinformation.
She recently had a different patient who was autistic, and her coworkers marveled at how easily she got the man to do things.
A little understanding goes a long way.๐
Sven climbed on top of his house and went to sleep there. Silly reptile doesn’t know what he wants๐๐ He makes me smile though. It’s good to see him moving around.๐
๐ค๐ฅฐ๐ป๐ฆ๐
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That new camera in your phone is wonderful! I see a difference.
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I’m loving how sharp the focus is. I need to figure out all the extras like I did with my old phone.
THEN, I need to learn about the digital camera my daughters got me for Christmas ๐๐คฆ๐ผโโ๏ธ๐คฃ๐คฃ๐
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It mustโve been tough for you daughter to see the patient in restraints. Health care workers should have sensitivity training for autism and other conditions which make patient handling different.
Yay for a chillax day and your continued walking. I hope it helps you sleep better. Sorry about the low humidity bothering your psoriasis. I hope the weather cooperates.
Hope itโs a peaceful night, tonight. Sleep well my friend! Lots of hugs and love ๐
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Thank you, Sadje!! I sometimes wonder if I’m ever going to have consistent good sleep๐ If it’s not my sleep issues, then Ben is having issues. Maybe someday…๐คช๐ Clouds rolled in this evening so maybe we’ll get a bit more humidity. Stress isn’t helpful either, and even on a “good” day, there’s too much stress still at the Casaโน Hopefully as more teachers get vaccinated, they’ll offer more ‘on campus’ days at Ben’s school๐ค
I hope you have a great Sunday!๐๐๐ผ๐ ๐ป๐ฆ๐ค๐ฅฐ
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Take care my friend! You are carrying more burden than most of us. I pray that you get a good break, some days of ease and good sleep and rest. Love and hugs!
Thanks ๐คฉ
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I hope your daughter does get a chance to talk about being a Mum to someone with autism with her co-workers. I’m sure they would learn so much from her. Thank goodness she was on duty to help the patient with autism. Her understanding and experience must have made such a difference to him.
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I’m definitely going to keep encouraging her to talk to the unit manager. It would help her coworkers, and the patients… and my cynical side says it would be great PR for April, since April is Autism Awareness Month.๐
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That must have been so hard on your daughter but probably a real blessing for the patient to have her caring for him. That would be great if she were allowed to give a training. She is definitely skilled and can provide lots of good information to others.
Sounds like a really chill day. Good to see Sven with his foot in his food bowl. That always makes me smile.
Hope you guys have another smooth chill day ahead!
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Sven makes me smile with his goofiness too. He can be so Judgey and grumpy, but he can be so dang cute sometimes.
Saturday was great until about 5pm, then the switch flipped๐๐คท๐ผโโ๏ธ
Sunday has been okay so far (knock on wood) and it’s GLYSB Eve!๐ฅณ๐๐ผ Daughter is off for the next few days, so hopefully we’ll have lots of chill!๐ค๐
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One, you DO need a vacation. Keep working on that eventuality.
Two, Autism Awareness is so critical. (Not that I need to preach to you about it, natch.) Every tiny step we can take is worth it.
Three, The Go-Gos instantly take me back. In a good way. So many fond memories, despite the craziness of the time…
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SOOO many memories! I’ve been thinking that after I stop doing Adventures every day, I might resurrect the Turbulent Teens series. ๐คท๐ผโโ๏ธ
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