#SLS ~ Here We Go

~ King Ben's Grandma

Thanks to Jim Adams, for hosting Song Lyric Sunday.

In Casa Cuckoo news, we had Ben’s yearly IEP meeting via Zoom on Tuesday morning. I wasn’t invited to this meeting, but I showed up anyway. Communication has been a big issue since they moved him to a different teacher. We have no idea what’s going on at school, and I am left completely out of all communications. His Speech and Occupational Therapists both greeted me by name, which made me feel a little better. I understand that Daughter is his only legal guardian, but everyone should know that I’ve always been just as involved as she has. I am co-parenting Ben.

Okay, getting off my Soap Box now. Ben has met or improved on all of his goals. We set new goals and then the District Rep nearly gave us a heart attack. She started talking about a meeting we will have in the Spring to turn over everything to the High School District. OH EM GEE!!! Ben is going to be officially a high school student in September. Daughter was worried that Ben wouldn’t be able to continue at his school, but we were told that it’s just a matter of which District is in charge, basically who pays for the tuition at his school and who provides transportation. The District Rep said if students are doing well, the high school district will often leave them where they are. It means that we will have to make sure we advocate for continued placement at the Spring meeting.

I’m still having my own trouble with Insomnia and all the random stuff that happens at Casa Cuckoo but doesn’t seem to happen to other people. We’re all healthy, and as you saw on Friday’s post, Sven is doing better. Daughter’s work schedule is all jacked up for December, and Ben starts Winter Break after the 17th, so this month is gonna be just getting through each day as best as I can.

I’m still lurking, but not commenting as often. I’m not feeling particularly social. It’s not depression, I know what to watch for with the Depression Monster, it’s more feeling quiet and introverted. I am an INFP so introversion is there. Anyway… enough yammering, let’s get to the music!

The prompt words this week – House, Room, Kitchen, Shower, Attic

I chose Brain Stew/Jaded by Green Day from their 1995 album Insomniac. Brain Stew contains the prompt word “room”, and was written after Billie Joe’s first son was born. It’s about being up all night with the baby. It could also reference methamphetamine use, which Billie Joe wrote about in the song Geek Stink Breath on the same album.

I included Jaded since although it is a separate song, they are generally played together with only a musical change to signify the transition. It’s like Pink Floyd’s Brain Damage/Eclipse.

I’m having trouble trying to sleep
I’m counting sheep but running out
As time ticks by
Still I try
No rest for cross-tops in my mind
On my own… here we go

My eyes feel like they’re gonna bleed
Dried up and bulging out my skull
My mouth is dry
My face is numb
Fucked up and spun out in my room
On my own… here we go

My mind is set on overdrive
The clock is laughing in my face
A crooked spine
My senses dulled
Past the point of delirium
On my own… here we go

My eyes feel like they’re gonna bleed
Dried up and bulging out my skull
My mouth is dry
My face is numb
Fucked up and spun out in my room
On my own… here we go

Jaded

Somebody keep my balance, I think I’m falling off
Into a state of regression
The expiration date rapidly coming up
It’s leaving me behind to rank

Always move forward
Going straight will get you nowhere
There is no progress, evolution killed it all
I found my place in nowhere

I’m taking one step sideways, leading with my crutch
Got a fucked up equilibrium
Count down from 9 to 5, hooray, we’re gonna die
Blessed into our distinction

Always move forward
Going straight will get you nowhere
There is no progress, evolution killed it all
I found my place in nowhere

Always move forward
Going straight will get you nowhere
There is no progress, evolution killed it all
I found my place in nowhere
In nowhere, in nowhere

.

Are you a Green Day fan? What song would you choose for this prompt? Thanks for stopping by, I’ll see ya next Sunday or possibly sooner. Remember “Always move forward. Going straight will get you nowhere“

HUGS!!

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28 thoughts on “#SLS ~ Here We Go”

    1. Thanks Sadje💕 I just can believe Ben is old enough to be a high school student. Time goes by so fast. His current school places the kids by age and abilities I think. Daughter and I will be strongly advocating for continuing at his current school, which keeps kids until they are age 22. Already we are moving his education goals from traditional learning to functional things. Like his math is about money and how much does he need to buy these three things, and how much change will he get back. Things he needs to be as independent as possible in his adult life.
      I hope you and your family are all doing well!🤗🥰🌻

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      1. It’ll be better for him to stay in familiar environment and you both will be happier too with him in his old school. Teaching life skills is very important and the practical thing to do. ❤️👍🏼

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  3. High school – yikes! Declan doesn’t transition to middle school for another year and a half and we’re both terrified for that. He’s just starting to get teased in fourth grade. Someone called him “weird.” Declan replied, “I’m not weird. We just like different things.” Which totally made my jaw drop. Hopefully he can keep that up and move into the bigger school with the same mentality. Anyway, I hope all goes well and that they keep him where he is since Ben is doing so well!

    I love the song. It is definitely one of my favorites. Have you seen them before? I don’t generally like concerts. Too crowded, too loud. But this is one band I might try to make an exception for.

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    1. Way to go Big D!! 🥳 It always looked tough for the Special Ed kids that mixed in with Middle & High school. Times have changed since we were in school, so hopefully Declan will continue to do well.🤞 With extra help🙄🤦🏼‍♀️

      Ben needs to be where he is. He still has trouble with impulse control, still eloped, and has waaaaay too many needs to be met on a regular campus. He’s already 5’4″ and 125lbs at 13. He’s gonna get bigger. And he’s fast too. Just keeping him safe is a big issue.

      Yes, I have seen Green Day several times. In fact they were one of the bands I saw this past August. The show was supposed to happen in 2020 but got rescheduled… twice. They are excellent live. Totally worth the money. I hate crowds and noise but concerts are different for some reason. Although 4 bands was too many for my old beat up body. I had to skip part of Fall Out Boy’s set to go lay down on the concrete by the entrance of the venue😂😂😂 I spend a lot of time Horizontal.🤷🏼‍♀️

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  4. Cool Greenday, they’re a great band 🎶. First thing that popped into my mind was In My Room from Upstairs at Eric’s by Yaz. Hugs, sweet sleep and a hungry Sven, to You 💓🦎😴🌈💫🤗

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    1. Thanks Jim! Ben will do well if they keep him at his current school, which is a “non-public” school, with his tuition paid by the district. It’s a school for autistic kids with lots of needs, needs that can’t be met by regular Special Ed on a general campus.
      I’m mostly just floored by realizing how fast time has gone by. I don’t feel old enough to have a kid in high school, let alone a grandchild🤦🏼‍♀️😂😂

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  7. When my daughter was in marching band, after practice, walking in from the field to their waiting parents/rides, the kids would play Brain Stew. It became the marching band’s anthem and eventually the teacher started letting them play it as part of their repertoire. It’s such a great song. My son was in band too, but quit because that teacher was such a dick to him and completely ignored the 504. Later the teacher was indicted for ‘inappropriate actions’ with a student. Maybe I should have written a blog post 🙂

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  8. Excellent song choice by Green Day.

    Wow, it’s a crazy world – Ben a HS Student – dang where is time going to.

    You could always just say ‘Hey l am just taking a break away from the madness of the blogging world’. I don’t hink it’s particularly an introversion thing although being quiet is a thing, but maybe that you are in the interim of changes to your personality, identity and individuality?

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    1. Changes are possible🤷🏼‍♀️ I am spending more time in my head, that’s why I mentioned the introversion. I don’t know… maybe it’s less daylight too. I don’t feel depressed, but I’ve noticed how much I miss the Sun lately. Maybe I’ve developed a bit of S.A.D. to go along with everything else. Or maybe I just need some sleep🤦🏼‍♀️ I think Ben slept a total of 8 hours over the weekend. Huge meltdown Sunday night. He hasn’t had one that bad in a while.
      Life continues and we take each day as best we can. Always moving forward, cuz going straight will get me nowhere😉
      💌💌

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  10. I am with you on the introversion. Sometimes socialising is too much hard work. So good to hear Ben is meeting his targets in school and that he can remain where he is despite moving to secondary education. It’s shocking how quickly they grow up though, isn’t it?

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    1. It IS shocking! They grow up too slow, then way to fast😂😂 I love the school Ben is at. They are a “non-public” school for autistic kids. I guess it’s different from a “private” school in that they only accept public school kids whose needs can’t be met by their home districts. The district has to pay his tuition, but it’s tax money they’re using. That part is too complicated. 🤪
      Being social can be exhausting. I’ve just been spending more time in my head🤷🏼‍♀️ I enjoy my own company😂😂
      🌻🤗🥰

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  11. We were woken from a skunk visitor. I guess i need to put away the bird feeders.

    High school? Ohhhh! Hope the school district keeps him where he is thriving.

    And of course you should be invited to the IEP’s. Those can be intimidating by yourself. We had our Regional Center rep come too. It helps.

    Nighty night. Going back to sleep

    Teri

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